CEO, Chief Executive at the MPS Society UK
Christine Lavery was appointed Chief Executive of the Society for Mucopolysaccharide and Related Diseases (MPS) in 1993. During her time at MPS she has taken the charity to new heights, managing a research budget of over £500,000 per year and a unique UK-wide advocacy service providing needs led support to over 1200 children and adult sufferers, their families and professionals in areas of home adaptations, special educational needs, access to new therapies, respite care, palliative care and pre- and post-bereavement support. Christine has served on the Department of health Advisory Board on Genetic Testing and is currently the patient representative on the Department Of Health National Specialised Commissioning Advisory Group. Between 1984 and 1993 Christine was employed as National Development Officer at Contact a Family, a national UK charity. During this period Christine worked with parents and carers to set up over 300 patient support groups for a wide range of specific diseases. In 1991 Christine with the help of a researcher wrote the first edition of the Contact a Family Directory of Rare diseases and Support.
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